There is one question I have been asked more often than I expected since my MCAS symptoms really started ramping up a couple of years ago. I think it is almost always asked with the best of intentions, but it lands harder than people realize. That question is: “But…you don’t really act like a sick…
I didn’t go into this part of my journey with high expectations. Dealing with a wide range of symptoms across multiple systems, I assumed I’d either be dismissed… or misunderstood. I don’t love going to the doctor, and dealing with a wide variety of symptoms across multiple systems made me pretty confident I’d be perceived…
Disclaimer: This post describes my personal experience using ChatGPT as a tool alongside medical care. It is not medical advice, and ChatGPT is not a diagnostic tool. Always consult qualified healthcare professionals for diagnosis and treatment. For years, I knew something was off. Randomly cold extremities. Days where I just didn’t have it on a…
It was dark in a hotel room in Florida, where I had just helped my two sons—nine and seven—fall asleep the night before we were due to fly back to Michigan. We had flown south to spend a week in the warmth so my sons could enjoy being outside with my parents, who were snowbirding…
My name is Craig, and eight years ago, during the heat of summer, my legs suddenly went cold. Even in the middle of long runs — fifteen miles or more, drenched in sweat — they wouldn’t warm up. That was the beginning of something I couldn’t explain. Even though I didn’t know it at the…
